Not Everyone Agrees With the Dr. Phil Challenge … Many More Do

Yesterday, in response to my post titled Caregivers Are Joining the Dr. Phil Challenge  I received the following comments from  a man taking exception to my efforts to get Dr. Phil to help.  Presented here are his views and my responses. I respect his right to express his opinions just as I respect the comments of the caregivers that I will post as they come in. Including some at the end of this very long post.

Note: I wonder if David  realizes how many of his statements  highlight exactly why I am pleading with Dr. Phil to respond. Read on and see for yourself.

David Blair – You never were clear on what you thought Dr. Phil should have done for this woman? He obviously has a huge network of resources, but mostly for people with drug & psychological problem. After all that’s his profession. When he offers his support during the show it’s largely an effort to showcase, well advertise for these centers. And the guest gets free help as a result.  He doesn’t work with any day spas? How can you be certain the show didn’t help her financially, probably not something they would have aired.

The Imperfect Caregiver (Bobbi Carducci) – I am asking the Dr. Phil Foundation to establish grants to offset the costs of respite care. Even a few hours a week would be an enormous help for so many.

David Blair – Well, as some of your commenters pointed out – there are currently millions of people in that situation. You don’t think Dr. Phil has THAT kinda money. This goes on in nearly every family in this country.  My mom spent and amazing amount of time caring for my grandparents. I think it’s a situation many find themselves in. Families have to step up. Dr. Phil can fix a lot, but he can’t make family members compassionate if they don’t choose to be? Just asking you consider the scale of what you are expecting.

The Imperfect Caregiver – Bobbi Carducci – I hear you. I don’t expect him to fund it all. I’m asking for an opportunity to use his resources to get the message out about what it’s really like and offer SOME funding via the Dr. Phil Foundation for some in desperate need. He dropped the ball when he asked that young woman what was the hardest part of caring for her father and she said, “lifting him several times a day,” and his response was to tell her not to feel guilty about wanting time for herself. Do I think Dr. Phil has THAT kind of money? No. Do I think he can inspire others to help? Yes, I do. Just as I don’t expect him to end domestic violence himself or fix every drug addict alone. He does assist some and that is what I am hoping for and asking from him. Get the dialog and the support moving.

David Blair – I think he did use his resources to get the message out. I admit, probably the only show I watch regularly. THAT”S RIGHT! (don’t care what anyone think either.)

He’s a smart guy. Every time I’m wondering what the fu@k’s he gonna say about that? But he always says the right thing – and always a 180 from what I’d say)

Not meaning to sound unsympathetic to your cause but trying to set up a fund then try to decide (based on I don’t know what) who should get the money the logistics of which are unimaginable! Not his job or responsibility. His only responsibility is to entertain me at 3 o’clock.)

The Imperfect Caregiver – Bobbi Carducci – Thank you for your thoughts on this. Enjoy the show.

 Read More Comments by Caregiver’s Joining the Dr. Phil Challenge:

Donna Thomson – Comment: Great idea, Bobbi!  Have you written to the foundation?  Where are they based – perhaps a personal meeting or skype meeting would be appropriate.  Well done for identifying this opportunity!

doggonedmysteries Margaret Hauser –  Comment: It’s easy to give advice when you aren’t the caregiver. I consider myself lucky when The Curmudgeon, my husband who has secondary progressive Multiple Sclerosis, is having a good enough day where I can leave him alone for a couple of hours.I can’t afford to have someone come in and give me a break. We live on his meager disability income because I can’t leave him alone for more than a couple of hours at a time. Some days not at all, depending on how bad his day is.

I haven’t had a real break in over a year. How about if Dr. Phil comes over and takes care of The Curmudgeon for a week and finds out what it is really like?I bet he wouldn’t be quite so free with his ‘advice to caregivers on taking care of themselves’ when he finds out that is not an easy thing to do when you have to take care of a home and a patient. I am not now nor have I ever been a nurse, so this is truly difficult.

Lisa Land – Comment: I am a caregiver for my 89 yr old father and saw the show as well. I wondered the same thing, why did he NOT help this girl? So many of us including myself are caregiving without an income and living off of the income of our carees, which is Social Security and is keeping us just above the poverty level. I am forwarding this to everyone I can to sign and get recognition.

Cathy Kelly – Comment: I am a caregiver for my friend and also was for his parents because there wasnt anyone else.  I am stuck here trying to get him help so I can get out. 8 years worth of ongoing stress is far too much. Help! Please! I dont want to go down with the ship.

Laura Walsh – Comment: amen to that , my husband can not be left alone, after massive stroke , bed ridden , hoyer lift to wheel chair  , canot speak or do anything for hmself  … we know what to do , but never get a chance to do it , all my energy is put into care giving and cooking and cleaning and ordering meds and doing every single need for my husband , all day long , every day , and in the middle of the night , every night … going on 4 years now !!! wearing pretty thin !!! It is almost an insult for someone to say remember to take care of yourself first , so you can take care of him , I know they mean well , but >>>>>

Jennien Seymour – Comment: well Dr Phil..unless you have given up your independence, place to live, and your job…to care for someone 24/7….you have no idea what it is like…there for you can not give advice on something you have no idea about.

Janet Ogaick – Comment: as a caregiver to my father until he passed away your advice truly means nothing what I needed was someone to help so I could have time for me time to be a mother to my 4 children time to unwind I don’t regret being my fathers caregiver he did for me and it was my turn to do for him but an hour or two a week it would have been wonderful

Carlene Reaves  – Comment: Thank you Dr. Phil for recognizing caregivers and how awesome they are. It would have been nice if you would have helped her do what you advised her to do. Much love!

Theresa Loder – Comment: as a caregiver for the past 20 years .. Parents, mother in law , and now for my husband who has many health issues, I often hear( at least once a day) for me to take care of myself..

I do my best to do that .. But it’s very hard for people not caregiving to understand the moment to moment challenges we all face.. Yes , it would be nice it someone who has a platform , to offer actual help to caregivers..

It is very hard to find any kind of respite out there..

Currently I am trying to get well from Bronchitis I picked up either in the hospital or nursing home where my husband had been recently.. He ended up with pneumonia..

This is the first time I had to go to the ER for myself .. We caregivers would appreciate any and all actual help we can receive by way of letting people know the challenges we face on a minute to minute basis. Most all of us are going to be faced with this someday… There needs to be lots of discussion about all things caregiving… Sooner rather than .  positive thoughts to all caregivers out there.. Theresa Loder

Contact Dr. Phil and add your voice to the Imperfect Caregiver challenge: http://drphilfoundation.org/  http://www.drphil.com/   @DrPhil   https://www.facebook.com/drphilshow?fref=ts

 

More caregiver comments tomorrow.

I Didn’t Know I’d Become Infected By His Illness Too

lost touch with people I used to be

Before Rodger came to live with us I thought I knew who I was. Up until that time I had a great track record of weathering life’s challenges. When faced with hardship I did what I had to do to solve the problem or adapt to the changes.  I cried and prayed often but never did I feel as if I’d lost myself.

I didn’t know I’d become infected by his illness too.

When he wandered I followed in his footsteps.  When he lashed out at me I lost my temper and shouted back only to be overwhelmed with guilt once the storm had passed. When he refused to bathe for days I’d find myself staring at my disheveled reflection in the mirror. Exhausted from lack of sleep and afraid of what he might do if I left him alone long enough to take a shower I looked, and probably smelled, as bad as he did.  Time after time we were admitted to the hospital together. Him to a bed me to an uncomfortable chair beside him. We spent days and weeks together in that place.

As he continued to fail it felt as if pieces of me were falling away too. I had to face the truth. We would lose this battle.

When Rodger died he took the person I used to be with him and left behind a part of himself and this changed and hopefully smarter me. The one writes our story. The one who would do it again for a family member if needed. The one who would not expect more from either of us than we are capable of giving.

Blessed be the caregivers, both who you are now and who you are becoming.

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Show Me the Path …

Holy Spirit Welcome

When I am lost and uncertain what to do next I go quiet and pray.

“Show me the path you want me to take.”

I’ll be the first to admit the road is often bumpy and much longer than I had hoped but,

I always end up exactly where I need to be.

Caregivers, I know how hard this is and even this, my favorite prayer, will not change that. However,  I have learned that sometimes a prayer often repeated results in help arriving in the most opportune time from some very surprising sources.  Try it. It can’t hurt and it may help.

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Trust Yourself

When caring takes courage

Trust Yourself

How could I do that when no matter what I did he continued to worsen?

Things accomplished one day were no longer possible the next. Memories came and went within moments. Laughter turned to tears and acceptance to anger so quickly it was impossible to know why.

Who am I describing in that passage? Him or me?

It could be either.  In truth, it’s both.

I came to finally trust myself because I finally realized I was the best person to do this, flawed as I was.  I made it up as I went along and so do you. That’s how this is done when you are juggling the love and the loss. “All at once, all the time.”

 

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Good Morning Caregivers – Sometimes I Question My Sanity

 I hope this little bit of levity brings a smile your way.

I question my sanity

how do you feel today

I am thinking of you today.

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Good Morning Caregivers – Get Off My Mountain

Many paths to success

Just as there are many paths up the mountain there are the many paths of caregiving.  How ours will twist and turn depends on the reason it began in the first place and how the one in our care responds to the many obstacles in the way. Will he reach for me to guide him along the way or will he insist on refusing my help only to fall and accuse me of pushing him?

Every day, around each new bend, we are faced with something unexpected. It could be a breathtaking moment when the air clears and the sun breaks through the clouds of confusion and he smiles. I feared I’d never see that twinkle again. “Thank you, Lord,” I whisper.

Far more likely it’s another loss making every step we take together more difficult. Our path is longer and far more arduous than we could have imagined. It is also the way that works for us. We figure it out as we go along.

 The last thing we need is “the one who runs around the mountain, telling everyone that his or her path is wrong.”

Unfortunately there seems to be as many of them as there are of us. If you are dealing with someone like that send them this Hindu proverb and tell them the Imperfect Caregivers says, “You are not helping. You are making things more difficult.”

GET THE HELL OFF THE MOUNTAIN

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Good Morning Caregivers – I May Not Be Perfect

I may not be perfect

If I am able to help you understand anything by way of this blog or my book I hope it is this:

I AM NOT PERFECT AND THAT’S OKAY

We are human.  We become angry sometimes. We feel resentful when others go off on vacation or simply out to dinner and we can’t. We get sick and tired of hearing the same question over and over. We need sleep and get cranky when we don’t get enough. Our heart breaks when the one we are trying so hard to help accuses us of mistreating them or stealing from them. Or worse yet, don’t remember who we are.

Some days we want to give in, give up, and let go so badly we nearly fall apart. And then we feel terrible. We doubt ourselves and become convinced we are bad people.

We are not. We are the caregivers. We are not perfect. We are human. We give all we have and then give some more. Y

You, like me, are not perfect but no one is.  You are a caregiver and because of you the one in your care will have many more good days than he or should would have had otherwise.

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Good Morning Caregivers – For Your Inner Peace

 

inner peace

But if it does, if someone is driving you crazy with advice on how to do this and telling you things you already know and have heard so often you want to scream. If a family member is more concerned about where the money for care is going than how much you are giving up to be there for the one who needs you. If your loved one is failing fast and your heart is broken, know that I understand and I am here for you.

Sometimes there is no peace for us. Only the next moment and worry about what it will bring. For those minutes, hours, days, years, I send you my prayers every night.

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Good Morning Caregivers – Just for Today

Maxine - Throw in the towel

Caregivers, just for today leave the towel where it landed. I know you are doing everything you can to maintain your home, your family, the person in your care. You do much more for others than you do for yourself. Just for today let go of every little thing that doesn’t have to be done right now.

Maybe you were taught to make your bed every day. Just for today leave it unmade. 
Instead of cooking dinner order a pizza.

Let the dust settle on the coffee table. It will be there tomorrow.
Stay in your pajamas.
Let someone else take out the trash.

Consider the things you do automatically because you have always done them … pick at least one … and just for today let it go. Use those few moments to have a cup of coffee with Maxine and absorb a bit of her attitude. Do it just for today. Do it for you.

 

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Good Morning Caregivers

superpower

When I was a young mother I often wished I knew what my babies were thinking. I wanted to know what the world looked to them, how it felt to be so dependent. Were there moments when they felt alone and wondered how they had landed in this place so different from what they had come to know? When did they recognize me as someone who loved them and would protect them always?

Caring for Rodger I wished again for that same super power. I never received the ability to read minds but I never stopped trying to figure out how to keep him warm, comfortable, and safe. Some days the things I tried worked, some days they didn’t. There were days many days when my actions confused and frustrated him. But there were also many when he recognized me as someone who loved him and would protect him always. Love and care are the super powers we have and that dear caregiver is everything to them regardless of their age or needs.  Be proud of who you are and what you do.

If you have a super power, or wish you did, tell us about it here.

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