When friends or family members question you about the care you are providing it is often because they don’t see what you see, or hear what you hear. They are not losing sleep because your loved one is up all night demanding to go to the bathroom every few minutes. They are not there to witness the tantrums caused by confusion and fear in the one needing care.
When visitors do come, they pull themselves together, holding on to their dignity as hard as they can. It’s exhausting for them and the result is a meltdown once the guests leave. You live with every part of these dreadful diseases.
I suggest is to use your smart phone to record what happens in the explosive moments. When someone questions your truth, share the video with them. It may result in understanding and maybe, an offer of help.
The Imperfect Caregiver 
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